Tuesday, May 26, 2009

February, 2009 - A "Dry Run".

For several weeks, following our return from my annual pre-transplant evaluation at Mayo, I expected every phone call to be “the one”. Then, in mid-morning on February 11th, after I had adopted a “what-will-be-will-be” attitude, I finally received that long-awaited Call. Within an hour we were en route to Mayo Clinic, Jacksonville. (Connie drove the entire way; I was too anxious to trust behind the wheel of our car.)


Upon arrival at Mayo’s Emergency Entrance, I was swiftly processed, escorted to my room in the Transplant Unit, and subjected to a blur of pre-operative procedures. My doctor, Martin Mai, M.D., examined me thoroughly, cleared my for the transplant and, in response to my query, said that, unless there was a problem, I wouldn’t see or hear from him until after the transplant which was now set for 11:00 p.m.


So, at about 10:30 p.m., when my nurse handed me her cell phone and said that Dr. Mai wanted to talk with me, I thought “This is not looking good.” I was right. Dr. Mai explained that the donor kidney was badly scarred, unsuitable for a transplant, and that my scheduled transplant was scrubbed.


My initial disappointment didn’t last long. First, I realized that my medical team would make every effort to ensure that I received a “good” kidney. Second, I now believed that I was at the top of the transplant list and could reasonably expect to receive a second call in the next few weeks.

Sunday, December 07, 2008

December 2008 - Moving Up!

A few days ago, upon our arrival at the Mayo Clinic, Jacksonville for my annual pre-transplant evaluation, we were pleased to learn that I'm now fifth on Mayo's kidney transplant list. Having moved up five spots in barely 60 days , I could be transplanted in the near future- subject to the complexities of tissue matching, which involves testing the similarity of certain proteins (antigens) between potential organ donors and recipients.

The immediacy of my situation became more apparent when my transplant coordinator and social worker engaged us in a discussion of some practicalities - the importance of accurate alternative telephone numbers, what to expect upon arrival at the Mayo Emergency Department, clarification of post-transplant immunosupressant and preventive medications, plans for remainig in the Jacksonville area following the transplant (to monitor and treat any signs of organ rejection), and so forth.

Mosts of the tests durng this three-day period focussed on my heart and its ability to tolerate the transplant surgery. No significant abnormalities were found and other clinical and laboratory tests indicated that my kidney condition is essentially unchanged. We had a lengthy meeting with my Mayo physician, Dr. Martin Mai, on the precarious nature of my "stable" condition and the advantages of a pre-emptive kidney transplant.

Given the immediacy of my situation, we decided to forego our plans to attend President-Elect Obama's Inauguration on January 20th.

Saturday, December 06, 2008

Thanksgiving - 2008

There was much to give thanks for this Thanksgiving. In addition to the stability of my condition, we were cheered by the visit of my sister, Eleanor Redway, from Los Angeles. Because we live on opposite coasts, this was our first Thanksgiving together in over 40 years! It was our "treat" for her her 80th birthday and Eleanor proudly told almost everyone she met that she was from Los Angeles and was here in Savannah, thanks to her "little" brother.

In addition to family time - Alison and her family joined us - Eleanor and I found some precious private time to share personal concerns and stories of years past - especially our childhood years in Roxbury, MA and our deceased parents and brother, Calvin. This was Eleanor's first visit to the South and she genuinely enjoyed Connie's legendary culinary skills, our tours of Historic Savannah, its ambiance, a hydro massage, and the warmth exuded by many persons, some complete strangers, that she met.

As Eleanor left for home with effusive thanks for her "birthday present", we were reminded how the joy of receiving can easily be matched by the joy of giving.

Wednesday, November 19, 2008

"We ain't where we want to be, but we ain't where we used to be."

The election is over!! My condition has taken a backseat to the history of the occasion. We did our "bit" by serving as poll watchers at the Georgetown section of Savannah - where 280 (!!) prospective voters were in line when the polls opened at 7:00 a.m. Aside from meal breaks, we stayed all day and were favorably impressed by the professionalism of the election staff. (Only ten of 1,200 voters were turned away. Each was promptly intercepted and interviewed by Connie and we were satisfied that there were no improper reasons involved.) Unfortunately, the results at the Georgetown precinct mirrored the statewide results - McCain received 57% of the vote. On a more positive note, Chatham County went overwhelmingly Democratic (thanks in large part to a strong AA voter turnout) and friend Larry Chisholm was elected the Chatham County's first AA District Attorney.

Returning home, after reporting the precinct results to Obama's GA headquarters, we got a bite to eat and, like millions of others world-wide, settled in to watch the national returns. When the words "President-Elect Barack Obama" appeared on the TV screen, we were overcome with emotion - and my thoughts returned to my late father who never failed to cast his vote (for Democrats, of course!), the Brooklyn poll worker who in 1955 insisted that, despite being a college graduate, I had to take a literacy test far across town, and those hundreds of unsung "foot soldiers of the Movement" in St. Augustine, FL who, in 1964, chose to stay in the outside jail pen, rather than promise to stop marching for the right to enjoy the beaches of "America's First City".

The following morning, bright and early, we drove to the nearby Savannah airport to purchase a copy of the NY Times of that historic date.

A few days later, thanks to the hospitality of Sharon Burrell, we decided with our good friends, Cliff and Di Broadnax, to travel to Washington DC - joining about four million other well-wishers - to witness the Inauguration of President-Elect Obama.

What a time to be alive!

Monday, October 27, 2008

Examination and Disengagement.

Mayo Clinic has scheduled me for my annual pre-transplant physical examination over three days in early December. (Fortunately unlike many other transplant candidates, this trip won't be a financial burden upon us because my insurance will now reimburse us for the expenses of travel, meals and lodging.) Yet, as an aside, I can't help but wonder whether I'll receive a kidney transplant by that time.

Last Wednesday, I visited my vascular surgeon, Dr. Christopher Wixon, and received both good and not-so-good news. Good news is that the aneurysm is unchanged in size and should not be a barrier to transplant, The not-so-good news is that my fistula, which would provide access in the event of dialysis, is not functioning well at all. He wasn't surprised that I declined the opportunity to be backup to a primary transplant recipient last month and we had an extended conversation about transplant surgery in my particular situation. He's not only an able surgeon, but an excellent communicator.

Meanwhile, because I'll be out of circulation whenever I do receive "the call", I've begun to lighten up on my community activities. Earlier this month, I announced my resignation as secretary of the 100 Black Men of Savannah and as chair of our Mentoring Committee. I was deeply moved by my brethren's kind expressions of appreciation and support. But - I'm still committed to work for the election of Barak Obama and Connie and I will perform poll watching duty next Tuesday, Election Day.